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Hayden Apke Benefit

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Saturday, March 28, 2015by Courtney

Meet Hayden Apke, son of Stacey and Ryan Apke. Hayden is a local 7 year old boy who has been fighting an undiagnosed disease since birth. He struggles daily with fluid on all of his joints that builds up until he has to undergo a procedure to drain the excess fluid from his body. Until a solution is found, Hayden must undergo this treatment every 3-4 months. His heart also has fluid around it, and he has already overcome congestive heart failure twice in his young life. Hayden is getting weaker by the day, due to this fluid increase. He has limited mobility, and impaired range of motion. As you can imagine, this is incredibly difficult for a seven-year-old boy who would love to be healthy and active. He suffers from such pain, but remains a very positive and happy young man. 

Doctors now believe that Hayden has a rare disease called Camptodactyly Arthropathy Coxa Vara Pericarditis Syndrome. It is a rare gene mutation that causes the chromosome to not produce the protein lubricant he needs in his body, causing him to fill up with fluid. It is not inflamed; therefore, anti- inflammatory medicine will not help. On March 28, 2015 Benefit Hands is proud to host a benefit at the Elementary and High School in Beecher City, Illinois. The money raised is to help with Hayden's medical bills, and will help the family afford to consult with specialists for this rare disease in Boston and Canada.

The community has stepped up in a big way, providing over $10,000.00 in donations to be raffled and auctioned at the benefit. We are now asking for your assistance to get the word out. We want to fill the schools on Hayden's behalf. Below is a schedule of events we have planned for Hayden's day. This is a family event, and we have activities for everyone. The kids will love power wheel racing, a bounce house, face painting, professional "FUN" photo sessions, and more. Mario, from the Mario Bros. game will be in attendance! For the adults we will have vendors, bake sale, silent auction, and live auction. There will be a prize raffle, a 50/50 raffle, and more. The whole family will enjoy a pork burger or hot dog lunch, the Culvers ice cream social, and a spaghetti dinner.

At the end of the day, everyone can enjoy music and dancing provided by J&S Dj services 

Event Pricing

Children 3-18 are $15 for lunch, dinner, and all kids' activities

Children under 3 are FREE

Lunch $5 for Pork Burgers or $4 for Hot dog (includes chips and a drink)

Dinner $5 for Spaghetti, Garlic Bread, Salad, and a Drink

Schedule of Events

Saturday, March 28 2015 at Beecher City High School:

8 am to ?? 3 on 3 basketball tournament

At the Elementary School:

All day events starting at 10 am and running until around 5pm:

Assorted Children's activities and games

Kid's bounce house

Wii Gaming system

Power Wheel Derby from 10-2

Power Wheel Races (10-4)

Craft and Sales vendor booths

Bake Sale (until we run out)

Culver's ice cream social (until we run out)

In the afternoon:

Photography fun by Melissa M Harden (http://www. melissamharden. com)

Face Painting

Mario from the Mario Bros. game

Silent Auction (12-3)

Live Auction (4-6)

Music and Dancing (6-8)

Lunch 11-1

Pork burgers ($5) and hot dogs ($4) including chips and a drink

Provided by: Djs processing, and Nuxolls.

Spaghetti Dinner 4-6

Spaghetti, garlic bread, salad, tea and lemonade

Provided by Joes Pizza and Deb's catering

 

For more information, please contact: Brigit Greuel at : 217-259-3418 or email benefithands@yahoo.com

benefithands.weebely.com and www.facebook.com/benenfithands

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